@article{oai:niigata-u.repo.nii.ac.jp:00016193, author = {恒松, 由記子}, issue = {2}, journal = {新潟医学会雑誌, 新潟医学会雑誌}, month = {Feb}, note = {Recent advance in molecular biology have led to the identification of several inherited cancer susceptibility genes. The pre-symptomatic testing is expected to reduce cancer morbidity and mortality by preventive interventions, early detection and . adequate management. But this new predictive tests may raise ethical, legal and, social issues (ELSI) in association with the right to control private information and confidentiality. The implications of test results are enormous, not only for the individuals but also for relatives who share the same genetic legacy and the whole society. Genetic testing for cancer susceptibility should generally be performed only in the context of long-term studies which are designed to measure the medical ’and psychological effectiveness. The Ethical Subcommittee in Japanese Society of Familial Tumors is now elaborating the guidelines for the research on genetic testing for familial tumors in order to support the individuals or families who are the subjects of ’the research ’on the blinical applications and to protect their human rights. Current standards for contents and process of informed consent and core elements in obtaining consent for DNA sample storage in medical research were listed up.}, pages = {99--104}, title = {5)遺伝性腫瘍の易罹患性(susceptibility)に関する遺伝子診断の倫理的諸問題(シンポジウム 遺伝子診断の最近の進歩, 第541回新潟医学会 )}, volume = {113}, year = {1999} }