2024-03-28T10:12:40Z
https://niigata-u.repo.nii.ac.jp/oai
oai:niigata-u.repo.nii.ac.jp:00022749
2022-12-15T03:53:00Z
453:456
471:537:538:1204
4) 神経変性疾患患者のQuality of Life(シンポジウム Quality of Life(QOL)を考慮した各科診療方針, 第444回新潟医学会)
4) 神経変性疾患患者のQuality of Life(シンポジウム Quality of Life(QOL)を考慮した各科診療方針, 第444回新潟医学会)
Quality of Life of the Patients with Degenerative Neurological Diseases(New Trend of Practice in Medical Specialties with Emphasis on Quality of Life)
渥美, 哲至
Quality of Life
ALS
respirator
生命の質
筋萎縮性側索硬化症
呼吸器
After introducing of respirater to the respiratory difficulty of the patients with amyotrophic lateral sclerosis, there have been reported patients whose life were over ten years under the respirater control. 107 patients (male 65, female 42) were registered as ALS in Niigata in 1988. An quetionnaire study disclosed that 24 of 42 patients among them were under respirater control. Most of them are bed patients under tube feeding and cannot move nor speak. Quality of life of these patients were severely restricted but they have a hope to live everyday. Method of communication with them is great problem to resolve. Expression of their wills is difficult, but performed by touching a switch of a buzzer, or yes no movement or eye signs, using cards or ward plates. Ward processor is useful for complicated communications or expression of their thought like a letter, a haiku or a record of self disease experience. Today's problem and future theme that their quality of life will be better, is to make a social system accepting and supporting them.
新潟医学会
1989-11
jpn
departmental bulletin paper
http://hdl.handle.net/10191/41453
https://niigata-u.repo.nii.ac.jp/records/22749
AN00182415
00290440
新潟医学会雑誌
新潟医学会雑誌
103
11
890
892
https://niigata-u.repo.nii.ac.jp/record/22749/files/103(11)_890-892.pdf
application/pdf
610.4 kB
2019-08-19